Rare Diseases Greece / RDG is a non-profit Association based in Athens covering the entire Greek territory, with 28 members – associations, unions, and civic, non-profit organizations representing patients with rare diseases throughout the country.
Rare Diseases Greece is the largest organization of associations dealing with rare diseases in Greece, with representatives in Committees and Working Groups, such as the Committee for Rare Diseases, the Working Group for Rare Diseases for Rare Disease Patient Registry and Treatment Protocols, as well as the Pharmaceutical Expenditure Monitoring Committee of the Ministry of Health.
RDG is the official representative body of Greece abroad, a member of the European Organization for Rare Diseases (EURORDIS) and the Council of National Associations of Europe through the Council of National Alliances.
OUR GOAL
With Rare Patients representing 3.5 – 5.9% of the population in Greece, the need for cooperation among the National Patient Societies for Rare Diseases was imperative to achieve the best possible representation and joint advocacy to attain equitable and holistic access to Health services for people with Rare Diseases.
