About Rare Diseases Greece / RDG
Rare Diseases Greece / RDG is a non-profit association based in Athens covering the entire Greek territory, with 28 members – associations, unions, and civic, non-profit organizations representing patients with rare diseases throughout the country.
OBJECTIVES & PILLARS OF ADVOCACY
BASIC PRINCIPLES OF OPERATION
It is based on voluntary participation, democracy, transparency, and accountability in decision-making and action implementation processes.
by respecting the Statute of the Union.
which specializes in the principles of economy, efficiency and effectiveness, responsibility and accountability, transparency, and honesty, as defined under Article 33 of Law 4270/2014.
those recognized and included with ORPHACODE in the “ORPHANET Catalog of Rare Disease,” as it is amended and supplemented each time and valid in the European Union as a reference field for Rare Diseases and recognized by the Greek State with the applicable Law 4213/2013.